After realizing that their daughter’s life could be saved, the parents of Ryleigh Hillcoat-Bee, a three-year-old who passed away from a rare disease, are furious.

The young girl had rhabdomyolysis, a condition that causes muscles to break down. Complications from the illness, which affects one in 200,000 people in the UK, caused her death.
Before releasing her from the hospital following a five-day stay, Blackpool and Fylde coroner Alan Wilson concluded that the medics treating her had overlooked the “red flags.”

Before Ryleigh was released, they had lost the chance to investigate her lack of movement in greater detail. Three months later, she died.

Physicians need to have known that the girl’s declining health might be related to a neuromuscular issue.
She was reportedly admitted to Blackpool Victoria Hospital, where tests revealed aberrant blood readings, including “extraordinarily high” levels of Creatine Kinase, which most likely indicated a sickness or injury to her muscles. In spite of this, medical professionals concluded the girl had either hepatitis or a chest infection. She seemed tired, sluggish, and floppy.

According to the Blackpool Gazette, Coroner Wilson said that he will ask the doctors who were treating Ryleigh at Blackpool Teaching Hospitals NHS Trust for evidence.

“The hospital was given clear advice… to get specialist advice from a neuromuscular specialist,” said medical malpractice lawyer Diane Rostron.

Rostron claims that if the hospital had consulted a specialist, they could have “diagnosed rhabdomyolysis” and notified the family, enabling them to look into additional treatment options.

We deeply regret Ryleigh Hillcoat-Bee’s passing. We wish her family the peace they so well deserve. I hope she finds peace.